English, Article edition: Health-Related Quality-of-Life Measurement in Patients with Parkinson's Disease Crispin Jenkinson; Ray Fitzpatrick; Viv Peto

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Physical Description
  • article
Language
  • English

Edition details

Title
  • Health-Related Quality-of-Life Measurement in Patients with Parkinson's Disease
Author
  • Crispin Jenkinson
  • Ray Fitzpatrick
  • Viv Peto
Physical Description
  • article
Notes
  • Outcome measures are increasingly used to assess the impact of diseases such as Parkinson's disease (PD) from the patient's perspective. These measures, in the form of questionnaires to assess health-related quality of life (HR-QOL), are of 2 main kinds: generic and disease-specific. The former is intended to be relevant to the widest range of health problems; the latter is developed specifically to assess HR-QOL for a specific condition. Possible consequences of PD have been assessed by generic instruments such as the Sickness Impact Profile (SIP), the Nottingham Health Profile (NHP), the Medical Outcomes Study 36-Item Short Form (SF-36) Health Survey and also by disease-specific instruments; in particular, the Parkinson's Disease Quality-of-Life Questionnaire (PDQL) and 39-Item Parkinson's Disease Questionnaire (PDQ-39). This article summarises the criteria whereby such instruments should be evaluated by potential users and describes in more detail the methods of developing and testing such disease-specific instruments for use in PD. There is a range of valid and feasible methods available for taking into account patients' views of PD outcomes. These will become important outcome measures in future clinical trials of treatment regimes.
  • RePEc:wkh:phecon:v:15:y:1999:i:2:p:157-165
Language
  • English
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